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Wednesday, July 30, 2008

DCCT, Elephant Paintings and Standing up for Cancer Research

DCCT and Elephant Paintings

Have you ever seen the elephants who paint (better than most of us!)? If not, check this video out. Well, the talented animals helped to raise about $6000 for an organization DCCT.

DCCT stands for Dreams Can Come True and was founded by Jemma Jacques. The organization recently held this charity fundraiser to sell the elephant drawings and use the money to help build orphanages in Thailand. Actress Nia Peeples spoke at the event.

I'm interested in seeing this organization grow and learning more about them in the future.


Stand Up for Cancer Research

I lost my husband to cancer and so did Katie Couric. There are millions of others who have been touched by this terrible disease (I actually fought thyroid cancer too and thankfully am clean now). So whatever can be done to raise money to fight cancer works for me. Read here to find out what the television stations are doing next month to raise money and awareness.

Thursday, July 24, 2008

Kassie DePaiva




Twelve years ago, actress Kassie DePaiva, best known as “Blair” on the ABC soap opera One Live to Live, never would have guessed that a storyline from her own show would later help her take care of her own real-life medical drama.
It’s 1997 and Kassie’s son James Quentin, or J.Q. for short, is born with profound hearing loss that would be diagnosed when he is about a year old. An otherwise healthy boy, Kassie began to notice something wasn’t quite right when she would see her friend’s twins, months younger than J.Q., watching conversations and babbling, but J.Q. wasn’t.
“I had no indication of his hearing loss when he was born -- at the time only 11 states mandated newborn screening, but since then, it’s up to about 39 states,” says DePaiva. “When J.Q. wasn’t doing what the twins were doing, we just dreaded the possibility this could be the case.”
After an audiologist test confirmed her worst suspicions, Kassie and her husband, OLTL actor James DePaiva, were crushed.
“They put high-powered hearing aids and sound on him and he was not responding. I could hear it through the headphones and my heart was breaking,” says DePaiva.
Like many parents going through a crisis, Kassie says she had anxiety and fear, but just didn’t want to deal with it at the time.
“In hindsight I can talk about it, but going through it I didn’t want to deal with it because you just want your child’s ears checked and hope the doctor is going to say there’s wax buildup and it’ll be fine,” says DePaiva. “But once you know there is a possibility, you have to allow yourself to think the worst and then when it comes to fruition, you’re just disappointed and you have to mourn that loss and feel those feelings and then move forward and do what’s best for him.”
Enter the storyline on One Live to Life. Two years before her son’s diagnosis, Kassie’s husband Jimmy’s character Max, and Luna, had twins and one was deaf. The DePaivas became friendly with a teacher for the deaf on the set.
“When we realized that J.Q. might have issues, we contacted her at the Lexington School of the Deaf and she led us to the League for the Hard of Hearing where we received a wealth of information.”
The League, according to their website (www.lhh.org) is the premier hearing rehabilitation and human services agency in the world for infants, children and adults who are hard of hearing, deaf and deaf-blind, and their families.
J.Q. is now 10 and has had two cochlear implants. According to the National Institute on Deafness and Other Communication Disorders, a cochlear implant is a small, complex electronic device that can help to provide a sense of sound to a person who is profoundly deaf or severely hard-of-hearing. The implant consists of an external portion that sits behind the ear and a second portion that is surgically placed under the skin.
Even with the right resources and the implants, DePaiva knows that coping with J.Q.’s hearing loss is an ongoing adjustment.
“It’s not exactly what you want to hear and there’s definitely obstacles when you find out your child has any type of disability, but you take what you’re handed and make the most of it,” she says. “It was difficult, and it continues to be difficult, but I think when we meet challenges in life, it makes us better people, depending on our choice in how we deal with it.
“For example, (the night before this interview) J.Q. was in a cranky mood and got a little angry at me, asking, ‘why did you make me have the second cochlear implant? I don’t like it as much as my first one.’ This gave me an opportunity to be a better parent, to talk to him about that in a way that was loving and understanding,” she says.
“I don’t pray every night that J.Q.’s hearing is going to be restored; I just pray that we all learn to be tolerant and helpful and understanding. I hope that I can do the best that I can with my son and that he grows up to be a loving, caring individual that can also have compassion for someone else with hearing loss.”
While many parents of special needs children suffer from strained relationships, the DePaivas have not had those kinds of challenges.
“Our marriage was never challenged because of J.Q.’s hearing loss, it’s challenged over the regular things that people get upset about like ‘could you empty the dishwasher, or can you fold the clothes,’ but if anything, (J.Q.’s hearing loss) brought our marriage closer because we both had the same goal -- to make sure J.Q. had the best opportunities available to him.”
To help support their son, the couple met with deaf adults and attended group therapy sessions for parents of children who needed speech therapy.
“We had an opportunity to talk about what works for us, what works for them, what are your obstacles, what are you overcoming.” Later, the couple discussed cochlear implants with various recipients of the technology while making their decision.
Today, she gladly shares advice for those who are just receiving this news for the first time.
“If a young couple finds out that they have a child with a hearing loss, look at each other and realize that God chose them and that is their responsibility, and this will bring them even closer.”
In addition to her acting role, DePaiva is also hard at work increasing awareness of the League for the Hard of Hearing, and making Happy Hats – hundreds of Happy Hats. These fun creations are handmade by the soap opera veteran, with 100 percent of the proceeds benefiting the League for the Hard of Hearing.
She also finds the time to record her music, including her latest album, I Want to Love You.
“Music warms my heart and doing things for other people warms my heart,” she says. “Acting is a lot of fun for me, but that is not all that I am. And I really like to do creative things and the whole reason behind making the happy hats was a creative outlet for me, but at the same time, I turned it into something that could help the League for the Hard of Hearing, which was a really positive place in our lives where we took J.Q. So, if we can help them out and I can crochet hats and give a little back in return, its fun.”
For more information on Kassie and her hats, visit http://www.kassiedepaiva.com/.

Monday, July 21, 2008

A contest from HeadCount -- Help to Register Voters

(can't figure out why I can't get rid of the underline -- sorry!)
HeadCount, the nonpartisan voter registration organization, and Jam Cruise, the nationally-renown concert festival at sea, have teamed up to give music fans a unique way to encourage voter registration – and sail for free on a four-day Caribbean cruise.

“Push the Button” is an innovative contest in which anyone can place a “Register to Vote Button” – a widget that links to an on-line voter registration page – onto any website and help register voters. Each contestant receives their own button which tracks click-thrus and therefore keeps a running score of which buttons are generating the most voter registration traffic. Contestants are encouraged to not only put the “Button” on their own web page or social networking profile, but also “Push the Button” onto other web sites by encouraging bloggers, webmasters, and anyone who controls a website to display the button as well.

“Displaying a Register to Vote Button is a simple, cost-free way to make it easy for people to register to vote,” said Andy Bernstein, HeadCount’s Executive Director. “We know that most bloggers and people who run websites will be happy to put up the button if asked. So we created this contest to give thousands of people a reason to ask - to ‘push’ the button.”


Entry information can be found at www.HeadCount.org. People must first sign an on-line “Pledge to Vote” to be eligible for the contest, which also entitles them to receive free music downloads and discounts. When they enter the contest, they receive their own, individual Register to Vote Button, which can easily be copied onto any web page. That button tracks every click-thru and credits each to the contestant. The prize, a trip for two on Jam Cruise 7 plus airfare, will be awarded to the person whose button generates the most click thrus and is also proven to have generated a sizeable number of voter registrations (simply clicking on a Register to Vote button repeatedly will not help someone win the prize).

The Prize


Jam Cruise 7 (www.jamcruise.com) is a place where musical fantasies come to life. The
luxurious MSC Orchestra will sail for four days and five nights in the Caribbean with over 20 performances by popular artists such as Les Claypool and Medeski, Martin and Wood. It leaves Ft. Lauderdale on January 4th and visits Belize City, Belize and Costa Maya, Mexico. The prize winner will receive a free windowed cabin for two, plus airfare. “We have supported HeadCount since its inception, often offering cabins as incentives for the volunteers who do the best job of registering voters,” said Mark Brown of Cloud 9 Adventures, promoters of Jam Cruise. “When HeadCount came to us with this truly innovative idea we were very excited because it gives everyone a chance to get involved and a chance to win.”

The prize is not awarded at random. This contest rewards those who help register the most new voters by getting websites to agree to display the Register to Vote Button.


Contestants can target blogs, music sites, corporate sites, social networking sites – any website that will display a Register to Vote Button. The button can already be found on popular websites like www.JamBase.com or www.CMJ.com. Now, it will appear on hundreds more.


“The central tenet of HeadCount is that everyone’s voice matters, and everyone can make a difference,” said Marc Brownstein, co-chair of HeadCount. “This contest really embodies that. Anyone with a computer and some tenacity can ‘push the button’ and help register voters. And a huge reward awaits them.”

Thursday, July 17, 2008

So, what's been going on!


I took a break from this blog because I was busy working on two books which will be out later this year, but now I'm jumping back in. Some good news:

1. I'll be a contributor soon for one of my favorite blogs, www.ecorazzi.com and I'll keep you posted when that starts.
2. Upcoming interviews on this site include: Curt Schilling and his wife Shonda (Curt graciously donated an autographed baseball for a local event to I was helping with to raise money for a patient with ALS (Lou Gehrig's disease), Kassie DePaiva from One Life to Life, and G.W. Bailey (remember him from Police Academy?!) and several more!

What else is going on -- well, while I was away, some celeb news landed in my email:
Remember Maureen McCormick, most known for portraying Marcia Brady on The Brady Bunch? She's been busy helping poor children in Zambia, Africa through Children International, a nonprofit humanitarian organization based in Kansas City, Mo. (* To read more about Children International, visit www.children.org.).

Model Cindy Crawford has been working on behalf of pediatric cancer. Check out the article here.
Sadly, Cindy lost her brother when he was only four years old to leukemia. I'm hoping to get an interview with Cindy soon.

Folk singer Pete Seeger is doing a benefit concert for New England farmers. He's amazing. I had the privilege of talking with him for a half-hour for an upcoming book on what musicians are doing to change the world (he's a neighbor from my neck of the woods!). He's such a dedicated man, especially to music and the environment. I hope one day to print the interview here as an excerpt from the book. In the meantime, read about the concert here.

It's nice to be back! LOL